Sunday, January 7, 2018

Hormone Therapy

I had my ct-scan a month after my 9th chemo.
The tumors have shrunk further but they are not completely gone.
I still could not get a note in my doctor's medical record of those precious 3 letters NED..."No evidence of disease." He is wondering if I am becoming resistant to my chemo drug but how can it be if the tumors are shrinking? He is not prescribing additional chemo treatment for the time being but wanted me to go on Megestrol Acetate (Megace) hormone therapy and added that I am going to get big since my appetite would increase.

December is Holiday season and I did not really feel on taking on a new therapy. I was comfortable with my chemo drug but this is new and I wanted a second opinion too. I know my doctor is really good but still a new treatment is a new and unfamiliar treatment and I want more or less additional information about it so I did talk with another OB-onco friend. She is the OB head in the hospital where my mother used to work a long time ago and would have been my doctor if she was covered by my HMO the first time I was diagnosed in 2011 but I felt really comfortable with my current doctor even back then that I did not think of switching anymore. Anyway, I just wanted a sort of family advice from another expert.

Hormone therapy is not really a treatment for ovarian CA but it is more of an adjunct therapy to improve my immune system and she did agree with my doctor. She was actually amazed at me... She said "Wow, stage 4 ovarian cancer with metastasis in the lungs since 2011, yet there I was!" (if I would continue the thought I would add... yup here I am still pretty! haha!)

So I finally bought my hormone yesterday and started taking it this morning. So it is not exactly treatment but I'll be good and take it till my next scheduled doctor's visit. There are still the prayers of so many people for me so I am still looking forward to good results. As always with God's grace.

Sunday, November 26, 2017

Visitation

Today is the end of the liturgical calendar for Catholics as we celebrate the Feast of Christ the King. As always I am half awake in the very early morning and today I found myself continuously singing in my head "Christus vincit, Christus regnat, Christus... Christus imperat."  There were a lot of other thoughts going on my mind but they were all passing as the song pops up again in my head. I guess that was my prayer...

At mid morning, my nephew came to me to reveal his realization about doing good. I felt very happy and kept shouting in my mind "Lord thank You! thank You!"

Then just before 6 pm the image of the Lady of Fatima came to our home. It was a block rosary. My sister-in-law mentioned it the week before but I never realized my blessing until I read the opening prayer for the welcome...

"We remember, dear mother, your visit to your cousin, Elizabeth. You set out proceeding in haste into the hill country to a town in Judah.You knew you were the Mother of the Savior. A great honour! But you forgot your dignity and in humility you went to serve your cousin. You come with the concern for our needs"

And the family replies "We are honoured to receive you into our house, O Mary."

And indeed I feel honored and blessed to be visited by Mary and on the great feast of Christ the King at that! Many times when I feel low when I would pray to her and say "Mary visit me like you visited your cousin Elizabeth, my namesake!" And indeed she has.

Saturday, November 11, 2017

Chemo 9

Due to my low magnesium level in my past chemo, the cardiologist prescribed me to take magnesium oxide and required me to have my blood tested for magnesium and potassium, one week prior to my chemo date so I did and added a CBC platelet count to also check my blood count particularly my WBC in advance.

My Magnesium and Potassium levels were normal but my WBC was really low that it would not pass for chemo. Far from it! I wanted my 9th chemo to push through on schedule since I really wanted it to be over plus I wanted to have good taste for food already by the time we celebrate my mama's birthday a little over a week after. So I felt a bit down feeling that I would need to have another injection to increase my WBC plus I will be delayed. But I prayed and asked the family to pray especially for my blood to be okay for my next extraction on Wednesday prior to my obgyn-onco checkup on Thursday. I was really happy when I got my result. Although my WBC is still below normal it would pass the ratio taught me by my doctor's secretary.

So, today I finally had my 9th Chemo with no untoward incident. Well they found a good vein for the drip only after the second attempt but that was not really big deal... and the drip was a bit slow so I wasn't able to follow the time schedule... still that did not really matter. What matter is that I had it on time. And I claim that it will already be my last chemo.

On the side, we (my niece who accompanied me and I) watched "A monster calls" on cable while in the hospital. It was based on the book of the same title. The monster there, who was actually the friend of both the mother who had terminal cancer and her son, was a YEW tree. It struck me because one of my main chemo medicine PACLITAXEL was initially from the Pacific Yew Tree. I was familiar with it because I researched it 6 years ago on my first chemo.

It was a sad movie as it was all about having mixed feelings when someone in the family is terminally sick but it was all about acceptance. Oh I am not saying I am terminally sick! I may have stage 4 cancer but I don't feel sick like the mother character there but still there is question of what is to come. Yet in the end, I come to realize that God is in control and whatever happens it will be good. So do not worry. Accept yet trust in the Lord and go on with life... living it to the fullest!

Saturday, October 21, 2017

Chemo 8

My second chemo pushed through but it was a little bit delayed since I still needed to have magnesium infusion because my magnesium level was low. My ob-gyn onco thought my cardio doctor would come earlier for the instruction but he came way late so the magnesium drip was also late.

But I was very glad it pushed through because my ob-gyn onco would be gone for 2 weeks! That would have meant BIG DELAY!!! so small delay is way better than BIG DELAY! :)

Praying that one more is needed and I am done with chemo.
Please Lord!

Sunday, October 1, 2017

Chemo 7

Had my 7th Chemo yesterday.

Thanks God the doctor got a good vein immediately. The chemo was tolerable as usual. It is not the chemo that cause pain and discomfort but always the after wards. In my case, pain and discomfort always starts after the second day. Nausea comes in immediately but last for around 5 days. Always finding good food to eat (good to my taste) for the first days so I could eat and gain strength immediately to be ready for the next chemo.

Actually I did not think that I'd have another set of chemo cycles. I was hoping that six would have been enough but as it is 3 more.

Somebody in church who survived breast cancer sent me a message on her prayer while undergoing chemotherapy. It was from the acronym of chemotherapy. It was a nice prayer and I was reading it the night before my chemo drip. But as I was reading it, I could feel my own prayer. It is actually my prayer each time I had but I just never prayed it following the acronym.

And so I prayed:

Come Lord Jesus
Hear my plea
Embrace me
Make me cling to Thee.
O my dearest Lord
Teach my troubled soul
How to rest on Thee
Eliminate anxiety.
Rouse my faith in Thee
Allow my mind and body
Peace, strength and security
You are with me in my chemotherapy.

Tuesday, September 12, 2017

CT-Scan and Lab results

Had my CT-scan and labs after a month but my doctor was away for a long time so only had my result checked today.

My nodules shrunk but not enough to be declared no evidence of disease so will have 3 more cycles starting month-end. Yay!

The hospital staff are having difficulty finding a good vein for the IV plus additional costs!
Lord please help me!

Sunday, August 6, 2017

Chemo 6

I finally had my 6th chemo on August 3. I was delayed by 2 weeks unlike my previous chemos which were on time (after 3 weeks each). I wasn't really feeling well after my 5th chemo and I fainted at one point and had to rush to the hospital but did not have to be admitted and was just given medication for pain, low salt and fainting. Then I also had cold and sore throat and had antibiotic plus my WBC really went down that I was given filgastrim for  3 straight days but after which it went up so high that I had to wait for it to normalize and had another blood test only after which was I admitted for treatment.

I think one of the reason I fainted was also because I was tired. My mother has dementia and since I am in the house taking care of her and  we sleep together I was losing sleep since she would wake up several times at night to pee or just get up and look around. Well add that to the fact that I don't really get to sleep well at night. (I really miss the days when I immediately sleep when my head touches my pillow and sleep undisturbed and wake up only when its time to wake up to another day... I lost that grace on the year I was first diagnosed with the big C and never had it back).

My family helped by relieving for me and allowing me to rest in another room. My niece came and my cousin also stayed with my mother. :) And now that I'm done with chemo we are back together! My mother has dementia but she does not seem to forget that I am her beautiful daughter (just don't tell that to my other 2 sisters)! :)

Anyway, my 6th cycle is done and in a month's time I'll have my CT-Scan and CA-125 tests. I still don't feel too well, the third day after chemo starts the "FEEL BAD" days and last for a week. Hopefully I feel really better after a week. Looking forward to a good CT-scan and blood results. Hoping to hear from my doctor again the three letters "N-E-D", No Evidence of Disease but better yet praying that I am finally clear with no recurrence happening. PRAYING!

Thursday, June 29, 2017

Chemo 5

Blood chemistry shows that my Hemoglobin count, RBC and WBC are still going down but thanks God it is still within the allowed limit for me to continue my Chemo. Unlike in 5 years ago where i had to have an injection and wait a few days for my WBC to go up. So far no need! Hopefully I still make it on time for my last comes July 20.

On my admission date, the veins on my hands are hiding and the nurse did not want to do the IV insert and called the Anesthesiologist. She used a gauge 24 abbocath needle (small) also found it difficult and had to do 3 inserts before being successful, she said she wanted to be 110% sure. And the IV drip for the hydration and pre-meds went well. however, the next day, when my main  chemo medicine (PACLITAXEL) was already placed, thed rip was so slow and would not make it to the 3 hour time frame so this time my main ob-onco doctor who was doing the rounds had to to the insert. He also found it hard but was able to find a good insert on the 3rd try. My cousin who was praying was so happy it finally was successful. So we had toi extend stay for a 2 1/2 more hours before we were finally discharged.

So fifth is finished, anticipating my sixth and last chemo cycle.

Praying that the tumors especially on the lungs are all gone and never going to return!

Thursday, June 8, 2017

Chemo 4

My blood results were still okay so I had my fourth chemo today after being admitted yesterday for some preliminary medications. It went fine once again!

Thursday, May 18, 2017

Chemo 3

Still on schedule. My blood result despite the WBC and and RBC getting low already are still within allowed level so I was admitted yesterday for preliminaries then had my 3rd chemo today. No unusual incident once more and as always was visited by my friends the night before to give moral support. What a source they are... they and so many others praying for me, supporting me especially my family too.

The pain and discomfort always kicks in on the second day after chemo on Friday night. Other patients in the doctor clinic doesn't seem to experience the pain in their legs and feet. The otehrs are mostly numbing of hands and feet but my pain is terrible despite the medicine but it goes away in a few days. So do the nausea and difficulty eating. After a few days I eat very well. Have too! Need to prepare my body for the next session. Just hoe I am able to sleep well so I could really gain good health and be ready.

And as always continue praying and trusting in the Lord. Everything will be okay.

Thursday, April 27, 2017

Chemo 2

Only three weeks! My lab test were okay indicating I could take another chemo on time. My second.

Thursday, April 6, 2017

Tuesday, April 4, 2017

Back to the second option

The mass in my lungs lungs have multiplied and gone bigger and I got a biopsy. Initial diagnosis was papillary adenocarcinoma but upon further strain test revealed that it was metastasis from my ovarian CA. So I am back to my second option... get chemo! No more operation but straight chemo using the same medicine.

Sunday, July 17, 2016

Five Years

Five years ago today, also on a Sunday, I was admitted to the hospital for my operation. Of course I was scared since I did not know what was going to happen to me but I knew that I wanted to fight the cancer.  It was the first step before going through chemo and I took it believing that it was what God wanted me to do.

So many people have prayed for me also and many still do, especially my mother and my whole family. And their prayers sustain me and strengthens my faith especially when I don't feel good and when I have my scans and tests. The nodules in my abdomen and my lungs are there but we just monitor them since my CA-antigen result is good.. So I just continue to exercise my third option which to pray and wait and trust the Lord.  The mass can go away and don't show up in the next test.  Everything is possible with God!


And so I passed Five years! I thank God for this gift of life!

Wednesday, July 23, 2014

The third option

Finally talked with my onco surgeon after my obgyn-onco referred me to him after seeing the whole abdomen ctscan result which showed a growing mass in my pelvic node. He initially gave me 2 options - get a PET CTscan or have the mass checked. Then after seeing the result he said that I should get a  PET CTscan to see if the mass is positive for CA since there is a 50-50 possibility for recurrence. If the result shows that the mass is positive but concentrated only in that area, then he would remove it through operation then I should get a chemo but if the result shows that there a more in different areas, then I should get chemo immediately, but if it turns to be negative then it would just be constantly monitored since it a bit big. He says that a needle biopsy would be difficult due to the location since the procedure might puncture my intestine.

I told him there is a third option. Wait for the Lord's healing!
I just had CTscan since a PET Scan aside from being expensive is also toxic and I want to rest my system before I have one... if ever.
Somehow it feels crazy, however, at the moment I feel that the Lord is asking to wait and pray and trust...
Am looking forward to a bigger miracle happening!

Thursday, July 17, 2014

Three years!

It has been 3 years since my operation!
It feels good to be alive!
Thank you Lord!

Saturday, October 27, 2012

Unite Against Cancer

I attended the Unite Against Cancer: A Prosure Fest at Saint Luke's Medical Center in Quezon City where there were discussion on Nutrition and Cancer and Food Innovations in the morning and Personality Development lecture in afternoon plus games, food and lots of freebies. There were so many participants and I got to interact with some other cancer patients and survivors who were in high spirit and full of life! The mood of the affair certainly felt like a fest but I could not finish the whole thing since I had to leave for my scheduled physical therapy.

I would have loved to stay and join the other participants in writing and signing in Commitment Wall (well it was actually a tarpaulin) but as I said I had to leave early so I thought I'd write my commitment in the paper cup I got over lunch with the other notes and thoughts I had while listening to the talks.

Here is my cup:

 The above quote is actually from William Ralph Inge but I could not remember the whole name when I wrote them in the cup.

 And thinking about his quote certainly made me realize that God could not have been bored working on me since I am certainly beautiful (hahaha, what can I say, I am biased!)

And since I could not write on the Fest's wall, I made my own wall... I mean cup where I could write my commitment that I will never lose my smile! There have been times before that I would worry but I know that God is in control so I should keep moving through life with a smile believing that my life is truly beautiful. :-)

Sunday, September 9, 2012

CT Scan update

I finally was able to go to my obgyne-onco for my follow up consult after I had my CT scan. I could not have it earlier because of my high creatinine result was high. I was only given clearance by the nephrologist when my blood test result and kidney ultrasound result did not show big concern plus my creatinine level improved. As always my doctor was happy which means I was happy too! He said 1 year and 2 months and No Evidence of Disease,  He also lessened my maintenance medicine and said that instead of a monthly checkup, it will now be every two months.

I like my doctor but I would not mind seeing him less frequently.

Wednesday, July 18, 2012

My Bow in the Clouds


My brother and sister-in-law picked me up in the gas station where my boss dropped me off and we were on our way home when he took another route instead of our normal route. There were very dark clouds going east but from the west were I came from was orange bright with the setting of the sun. I was thinking what an extreme! The clouds were so dark yet the rain was not heavy… it was a little past 6 pm yet there were still some light despite the dark clouds. It seemed ironic…

I was still thinking about it when my sister-in-law mentioned a rainbow. I saw it and it was just faint since the clouds have not really cleared up. But I just kept on looking and as we were moving I followed the rainbow and noted that it was a full rainbow. And though it was faint in front of us the other end which was on our back now was really bright!

My brother thought he was avoiding traffic but got stuck instead and my sister-in-law was teasing him. I was silent but at the back of my mind I thought that maybe God told him to take that route so I get to see the rainbow...

Because today is the first year anniversary since I had my operation...

And God is reminding me of His promise to me last December when I was doubting if I could make it to my next birthday and He answered me with the quote from "The  Daily Bread" reflection book my sister gave me which says:
"Daughter, your faith has made you well. Go in peace
and be healed of your affliction"
Just like with Noah, He has reminded me of His covenant! He is really a great God and he surprised me with something special for this anniversary. Pretty awesome!
Thank you Lord!

Saturday, July 14, 2012

Ablaze

Yesterday I had my preliminary blood test in preparation for my CT scan. I planned to have my CA 125 (tumor marker) test today after I get the creatinine result then schedule my CT scan. I was expecting good result but as it turned out my creatinine level was higher than normal, my RBC and WBC were low plus off result for the other blood test. That meant I could not have my CT scan so I just had my tumor marker and will get the result on Monday. I was going to wait for the doctor for consultation to improve my blood result but they told me that they are not sure what time or if he was coming and recommended that I just go to another clinic...

Well I could since there is another clinic nearby but instead I took a taxi and headed to the Metro Manila Quarterly Leaders Assembly my chapter head mentioned. I came in late and the place was full but I found a seat at the back with my co-chapter. I was awed when I came in because almost all were wearing RED in accord with the theme "Ablaze!"

They were already giving testimonies and as I sat there listening, I thought I have attended some of our sector's assembly but have never really thanked all for their prayers and it would be nice to be able to formally thank the community. I was so far from the stage and did not know how to go about it when I saw Sis Myra coming, she was the one who organized a "2000 Hail Mary" before I had my operation. I was bold to ask her if I could share to the group and she smiled and sat beside me saying that she was one of the processors and asked me to write on a piece of paper what I was going to share. I just wrote there I wanted to thank everybody for their prayers... Sis Myra said that I should also share some like losing my hair and I smiled. I did not really know what to say but I just suddenly felt the desire to share! I also was not sure if I'll have a chance since I knew there were others lined up but they called me...

And I stood and I talked...

I told them that mine was only going to be short talk to thank them and tell how blessed I am to be in a prayerful and supportive group but I found out that words flowed from my mouth and I continued to talk until I saw the cue from the timer.

I listened to the other sharers but I guess our last sharer put it pretty well. The Lord is good and He will never abandon us... sometimes it seems that things are not going good but the Lord will always give more so we should all be fired up with our love and service for Him. Ablaze!

Me... I'd rather write than talk but I guess the Lord set me ablaze and made be bold to speak of His goodness! He is really in control!